Brunswick Data Sharing Agreement

While the social value of this research and access to data is considerable, it does not in itself justify the provincial government`s significant investments in time, money and resources in an environment of tax restraint and government cuts to services. To ensure that the work is directly relevant to the government`s priority policy areas, two key departments have multi-year research agreements with NB-IRDT, in addition to working with the Ministry of Health on MSSU. These agreements defined research funding and the structure of a governance model that would identify and oversee projects of direct importance to these departments. It should be noted that the partnership with NB-IRDT would allow some agencies to access related data collected by other research evaluation agencies and programs that would otherwise not be available. Another advantage of the research agreements was the mobilization of internal state resources to support data processing and transmission and the fact that the transferred data would also be available to the broader research community. NB-IRDT`s right to provide researchers with unidentified personal and personal information is provided for by the New Brunswick Health Privacy Act (PHIPAA). The conclusion of original and business agreements with the provincial government, as provided by PHIPAA, has made NB-IRDT a research centre. A research data centre is defined in legislation as “a public body that collects and links personal or personal health information on evidence-based research, analysis or decision-making processes.” (New Brunswick Government 2009). In addition, NB-IRDT can act as a data manager, agent and/or information manager as a research data centre.

All three roles include the collection, maintenance, use, retention or provision of information management services for personal health information. Describes the terms and conditions for data exchange between the department and NB-IRDT.

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